I started this blog because I know there are many people who struggle, in many ways like myself. I was diagnosed with Charcot Marie Tooth, CMT, as a child. I struggled with weakness especially on my right side. I didn’t understand the magnitude of this when I was 8 years old.
Fast forward 28 years later, I am working as home care nurse. I had recently fallen with my patient but I took the fall. Meaning, he fell on me because I was not going to let him get hurt.
I felt a little sore but not too bad. I wasn’t even hurt enough to see the doctor so I reported it and went on. A day or two later I was at the kitchen sink and my left arm and hand felt numb. I shook my hand and went on.
The numbness continued it was affecting my arms, legs, hands, and feet. The numbness turned to stabbing pain, then burning pain, electrical surges going through my limbs, it just got worse and worse.
The “attacks” starting happening almost every day. It didn’t matter because the following day I couldn’t really use the affected limb. I was frustrated, scared, tired, weak, in a lot of pain, and unsure of what to do.
I saw my family doctor, he sent me to my neurologist. I explained my whole history to him and he examined me and said I was suffering from neuropathy pain. He said it probably wasn’t related to the fall but inevitable because of the CMT I have.
That’s when my chemical life really began. So many meds, so many side effects, I lost my job because I was no longer reliable. My depression was palpable. I am a born again Christian. God doesn’t give you more then you can handle but this felt like more.
This is the fork in my life. The turn toward my chemical life and the struggles I feel every day. If you want to hear more or discuss your battle please let me know. I will continue as much as possible.
Never give up.
Living with Fibromyalgia, CMT, etc……